Supports Coordination - An Interview with Jessica Fenton, Miracle Works

Subtitle: Part of the Our Parallel Paths podcast series hosted by Gerry Arango Deely, Ed.D.

Recording Date: May 3, 2024

Transcript: Download transcript HERE

Keywords: Supports Coordination, waiver funding, CMS, IEP, ISP, transition, Our Parallel Paths, Gerry Arango, Geralyn Arango Deelely, Jessica Fenton, Miracle Works, advocacy, family

Episode Summary: In this episode, host Geralyn Arango Deeley introduces her guest, Jessica Fenton, who is a Supports Coordinator and Director of Miracle Works, a Supports Coordination Organization in Pennsylvania. They discuss the role of supports coordinators in locating, coordinating, and monitoring services for individuals with disabilities. They also talk about the different waivers available in Pennsylvania and the importance of advocating for the needs of loved ones. They touch on the transition from the Individualized Education Program (IEP) to the Individualized Support Plan (ISP) and the shift in language between goals and outcomes. The episode ends with a brief discussion of some upcoming changes in the system.

Topical Index:

Season 4 Kick-Off [00:00] Unique challenges [01:12] Moving from entitlement to qualifying [03:05] Introducing the Supports Coordinator! [04:55] Working definitions [06:44] The budget - needs based [08:42] Waivers - what are they [10:51] Advocacy - be your own voice [13:40] First step - reaching out to the county AE [16:57] Do waivers move with you? [20:09] Goals vs. Outcomes [22:42] Changes coming to Pennsylvania [25:05] Closing of pt 1 - intro to pt 2 [29:48]

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